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KSC Hatch's avatar

As a hyper-mobile bendy spoonie...it's very easy to do the test on yourself to check—which you may already know and so you can ignore this. But anyone interested, the Beighton Scoring assessment is a good way to check the baseline: https://www.ehlers-danlos.com/assessing-joint-hypermobility/

Also, if you supect you have hEDS, or any other form of EDS, it's worth looking at the clusters of signs of it, like easy bruising, a real aversion to needles because you can feel them constantly while they are in your body, dizziness and headrushes when standing still, weird gut health things, developing celiac later in life, regular headaches, chronic pain etc.

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Melinda Thomas's avatar

I had this experience with FItBit. After losing the FitBit wristband, I realized how it had revealed and exacerbated my need to be perfect or at least better, to do more and it felt so unhealthy. I did not reinvest in one, and will not own an Apple watch or any other device. Listening to my body is my best form of self care.

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